Meksyk - ludzie z zespołem Pradera-Williego - Sipa USA
EN_01282487_0079
*** World Rights ***
Jorge lies on a hospital bed during a polysomnographic examination?at the Salvador Zubir?n National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders.?Sleep disturbance is common among patients with Prader-Willi syndrome independent of age and weight. Jorge Antonio Moreno Gayt?n, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings' belongings in order to have money to buy food. He was also known to leave restaurants without paying. "Our worst enemy is hunger, it's what will kill us", Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as "Lupita', also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In?newborns?symptoms include?weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to?obesity?and?Type 2 diabetes. There may also be mild to moderate?intellectual impairment?and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS?affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Benedicte Desrus/Sipa USA)
2017-05-31
Benedicte Desrus/Sipa USA/East News
Sipa USA
Benedicte Desrus
sipausa_21272645
1,1MB
21cm x 14cm by 300dpi
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